Press release | Press releases | Writing

13.09.22

WASHINGTON – U.S. Senators Bill Cassidy, MD (R-LA) and Bob Casey (D-PA), members of the Senate Committee on Health, Education, Labor and Pensions, today introduced the Sepsis Data Trust , Outcomes, and Innovation Act. This bipartisan bill would create a voluntary, privacy-protected sepsis data trust to track infectious strains, the body’s overwhelming and life-threatening response to infection, and other sepsis-related information. This information will then be used to improve treatment and clinical coordination of patient care.

“Sharing information is critical to the success of recent cancer research. This same approach is needed for sepsis,” said Dr. Cassidy. “Our bill closes the gaps in the treatment of sepsis in hopes of saving more lives.”

“The more we know about sepsis infections, the more we can prevent future tragedies. This bill would provide much-needed data, improve patient care and save lives,” said Senator Casey.

“Creating a national sepsis data trust and authorizing state-based sepsis pilot programs will give researchers, innovators, clinicians and public health officials critical insight into a disease responsible for 350,000 deaths in the United States each year”, said Thomas Heymann, President and CEO of Sepsis Alliance. “We know from existing data repositories, such as the National Cancer Registry Program, that better insights into how a disease progresses, who is most affected and what treatments work strengthens our ability to protect our communities. We look forward to seeing this bill become law to help us save lives and limbs from sepsis. »

Currently, Louisiana reports the highest sepsis death rate in the United States.

Background

The bill would allow the US Secretary of Health and Human Services to establish a national sepsis data trust and fund pilots and state programs. The Sepsis Data Trust would be a voluntary system to aggregate data on different strains of bacteria that contribute to the pathology of sepsis and the analysis of genetic factors that contribute to the risk of sepsis.

All patient data in the trust will be anonymous, anonymized and protected by confidentiality.

This bill is the first proposal to establish an interoperable sepsis data trust to enable hospitals and medical research centers to work together and improve disease outcomes.

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